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Historiography of Precursors to SRV and Normalization 1

1966 1

‘Dehumanization and the Institutional Career’ Vail 1966 1

Historiography of Normalization and SRV 1

1969 1

‘Christmas in Purgatory’ Blatt and Kaplan 19?? 1

‘The Evolution of Dehumanization in Our Institutions’ White and Wolfensberger 1969 1

‘PASS 1’ ?Author 1969 1

‘Changing Patterns in Residential Services for the Mentally Retarded’ Kugel and Wolfensberger 1969 1

‘Why Innovative Action?’ Kugel 1

‘Basic Facts About Public Residential Facilities for the Mentally Retarded’ Butterfield 1

‘Purgatory’ Blatt 1

'A Scandinavian Visitor Looks at US Institutions' Nirje 1969 1

‘The Origin and Nature of Our Institutional Models’ Wolfensberger 1969 1

‘Recommendations for Institutional Reform’ Blatt 1

‘The Normalization Principle and Its Human Management Implications’ Nirje 1

‘Residential Services Within the Service Continuum’ Tizard 1

‘Special-Purpose Residential Facilities for the Retarded’ Dunn 1

‘A Metropolitan Area in Denmark: Copenhagen’ Bank-Mikkelson 1

‘A Rural County in Sweden: Malmohus County’ Grunewald 1

‘An Urban-Rural Area in Britain: Essex County’ Norris 1

‘A Densely Populated Small State: Connecticut’ Klaber 1

‘The Creation of Settings’ Sarason 1

‘The Free Choice Principle in the Care of the Mentally Retarded’ Cooke 1

‘A New Approach to Decision-Making in Human Management Services’ Wolfensberger 1

‘Action Implications: USA Today’ Dybwad 1

1970 1

‘The Principle of Normalization and Its Implications to Psychiatric Services’ Wolfensberger 1970 1

‘The Normalization Principle- Implications and Comments’ Nirje 1970 1

The Hospital as a Normalizing Training Environment Gunzberg 1970 1

‘Moving toward normalcy’ Zarfas 1970 1

1971 1

1972 1

‘The Right to Self-determination’ Nirje 1972 1

‘Normalization- The Principle of Normalization in Human Services’ (The Big Red Dot) Wolfensberger (ed) 1972 1

The Big Red Dot Chapters by Wolfensberger 1

Reconciling behavior modification procedures with the normalization principle Philip Roos 1

Changing vocational behavior through normalization Simon Olshansky 1

The right to self-determination Bengt Nirje 1

The dignity of risk Robert Perske 1

1973 1

‘The Origin and Nature of Our Institutional Models’ Wolfensberger 1973 1

1974 1

‘Normalization and Behaviour Modification in the Workshop’ Brickey 1974 1

1975 1

‘PASS 3’ Wolfensberger and Glenn 1975/1978 1

1976 1

‘Changing Patterns…’ Kugel and Shearer 1976 1

Some Basic Changes in Residential Facilities Earl Butterfield 1

The Origin and Nature of Our Institutional Models Wolf Wolfensberger 1

A Perspective Ruby Luna 1

The Public Leopold Lippman 1

Public and Professionals G. Allan Roeher 1

The News Media Ann Shearer 1

The Legislature Gary Marbut 1

The Executive Burton Blatt 1

The Uses of Courts and of Lawyers Thomas Gilhool 1

The Universities James Clements 1

The Joseph P. Kennedy, Jr. Foundation Eunice Kennedy Shriver 1

Change by Persuasion-The Work of King Edward's Hospital Fund for London James Elliott 1

The Normalization Principle Bengt Nirje 1

Denmark N. E. Bank-Mikkelsen 1

Sweden Karl Grunewald 1

ENCOR, Nebraska Brian Lensink 1

Wessex, England Albert Kushlick 1

ComServ, Canada G. Allan Roeher 1

Architectural Implications H. David Sokoloff 1

The Caring Staff Ann Shearer 1

Parents and Professionals Robert Kugel 1

The Handicapped Person Ann Shearer 1

L’Arche Ann Shearer 1

‘The Normalization Principle, and Some Major Implications to the Architectural-Environmental Design’ Wolfensberger 1977 ? 1

‘The Prophetic Voice and Presence of Mentally Retarded People in the World Today’ Wolfensberger 1977 ? 1

‘An Attempt Toward a Theology of Social Integration of Devalued/Handicapped People’ Wolfensberger 1978 ? 1

‘The Normalization Principle’ Nirje 1976/1980 1

‘Basis and Logic of the Normalization Principle’ Nirje 1985 1

1977 1

‘Behaviour Modification, Normalisation and Person-orientedness’ Briton 1977 1

1978 1

‘Normalisation: What of and What for?’ Briton 1978 1

‘Normalization: A New Look’ Beckman-Brindley and Tavormina 1978 1

‘Normalisation: Attention to a Conceptual Disaster Area’ Aanes and Haagenson 1978 1

1979 1

1980 1

‘Normalization, Social Integration and Community Services’ Flynn and Nitsch 1980 1

Chapter Summaries 1

Preface and Introduction 1

‘A Brief Overview Of The Principle Of Normalization’ Wolf Wolfensberger 1

‘The Normalization Principle’ Nirje 1

‘Denmark’ Bank-Mikkelsen 1

‘The Definition Of Normalization: Update, Problems, Disagreements, and Misunderstandings’ Wolfensberger 1

‘Research, Empiricism, And The Principle Of Normalisation’ Wolfensberger 1

‘Anti-Institutionalization The Promise of the Pennhurst Case’ Ferleger and Boyd 1

‘Right To Services In The Community: Implications of the Pennhurst Case’ Laski 1

‘Toward The Realization Of The Least Restrictive Educational Environments For Severely Handicapped Students’ Brown et al 1

‘Special And Generic Early Education Services’ Galloway and Chandler 1

‘Research On Community Residential Alternatives For The Mentally Retarded’ Heal, Sielman and Switzky 1

‘Vocational Habilitation A Time for Change’ Pomerantz and Marholin 1

‘Comprehensive Vocational Services’ DuRand and Neufeldt 1

‘Normalization And Communitization Implementation of a Regional, Community-Integrated Service System’ Hogan 1

‘Supermarket Of Services Allows Dependent Adults To Avoid Institutions’ Judge 1

‘Normalization, Pass, And Service Quality Assessment: How Normalizing Are Current Human Services?’ Flynn 1

‘Normalization: Accomplishments to Date and Future Priorities’ Flynn and Nitsch 1

‘ NORMALIZATION BIBLIOGRAPHY’ Nitsch, Armour and Flynn 1

1981 1

‘Normalization: A Revolution in Process’ Meyer 1981 1

‘The Principle of Normalization in Human Services: A Brief Overview’ Wolfensberger and Thomas 1981 1

1982 1

‘Normalization’s Theoretical Status and Future Residential Models’ Beckey 1982 1

‘A Brief Outline of the Principle of Normalization’ Wolfensberger and Tullman 1982 1

Wolfensberger And Social Role Valorization 1

‘TIPS- Training Institute Publication Series’ 1

1983 1

‘Obstacles to Normalization in Community Settings’ Bercovici 1983 1

Development of the PASSING Instrument 1

‘PASSING’ Wolfensberger and Thomas 1983 1

‘Social Role Valorization- A Proposed New Term for the Principle of Normalization’ Wolfensberger 1983 1

‘How We Carry the Ministry with Handicapped Persons to the Parish Level’ Wolfesnberger 1983 ? 1

‘The Most Urgent Issues Facing Us as Christians Concerned with Handicapped Persons Today’ Wolfensberger 1983 ? 1

1984 1

‘The Good Life for Mentally Retarded Persons’ Wolfensberger 1984 ? 1

‘Social Role Valorisation: A New Insight, and a New Term, for Normalisation’ Wolfensberger 1984 ? 1

1985 1

‘Living and Learning in Segregated Environments: An Ethnography of Normalization Outcomes’ Brady and Cunningham 1985 1

‘Mental Handicap: The Feasibility of Normalisation, An Introduction’ Blunden 1985 1

‘Sheep in Wolf’s Clothing: Impact of normalisation teaching on human services and service providers’ Baldwin 1985A 1

‘A Reconceptualisation of Normalisation as Social Role Valorization’ Wolfensberger 1985 1

1986 1

1987 1

‘Civil Rights and Social Science Answers to the Question "How Evil are Normalization, Deinstitutionalization and Mainstreaming?"’ Butterfield and Gow 1987 1

‘Lifestyles: An approach to training staff in normalisation principles’ Brown and Alcoe 1987 1

‘Do You Really Understand Normalisation?’ Brandon 1987 1

‘Normalisation in Mental Handicap- acceptance without questions?’ Boucherat 1987 1

‘Normalisation and Elderly Persons: In Whose Best Interests?’ Baldwin and Stowers 1987 1

‘Values in the Funding of Social Services’ Wolfensberger 1987 1

The Development of ‘A Brief Introduction to SRV…’ (The Monograph) 1

‘A Brief Introduction to SRV…’ (1st Edition) 19?? 1

‘A Brief Introduction to SRV…’ (2nd Edition) 19?? 1

1988 1

‘Special Education in the least restrictive environment: Mainstreaming or Maindumping’ Chapman 1988 1

‘A Feminist Perspective on the Normalization Principle’ Burns and Roberts 1988 1

1989 1

‘I’m not handicapped- I’m different- ‘Normalisation, Hospital care and Mental Handicap’’ Candappa and Burgess 1989 1

‘Whose ‘Ordinary Life’ is it Anyway?’ Brown and Smith 1989 1

‘Applied Behaviour Analysis and Normalization: New Carts for Old Horses? A Commentary’ Baldwin 1989A 1

‘Applied Behaviour Analysis and Normalization: Reason, 1

Rhetoric and Rationality’ 1

1990 1

1991 1

‘Implications of Normalisation Work for Professional Skills’ Brandon 1991 1

‘Increasing Value: The Implications of the Principle of Normalisation for Mental Illness Services’ Brandon 1991 1

‘Normalisation or "Social Role Valorization": an Adequate Philosophy? Bayley 1991 1

1992 1

‘Towards a Sociological Critique of the Normalisation Principle’ Chappell 1992 1

‘Normalisation, Needs and Schools’ Carson 1992 1

‘Normalisation- and now for something completely different’ Carson et al 1992 1

‘What price theory if you cannot afford the busfare: Normalisation and leisure services for people with learning disabilities’ Brown 1992 1

‘Normalisation, Community Care and the Politics of Difference’ Branson and Miller 1992 1

‘The Normative Lack of Christian Communality in Local Congregations as the Central Obstacle to a Proper Relationship with Needy Members’ Wolfensberger 1992 ? 1

‘Normalisation for the Nineties’ Brown and Smith 1

‘What is normalisation?’ Emerson 1992 1

‘Normalisation training: conversion or commitment?’ Lindley and Wainwright 1992 1

‘Normalisation: from theory to practice’ Tyne 1992 1

‘The social origins of normalisation’ Whitehead 1992 1

‘Normalisation and applied behaviour analysis: values and technology in human services’ McGill and Emerson 1992 1

‘Inside-out: a psychodynamic approach to normalisation’ Smith and Brown 1992 1

‘Social welfare ideologies and normalisation: links and conflicts’ Dalley 1992 1

‘The limits to integration?’ Szivos 1992 1

‘Promoting race equality through normalisation’ Ferns 1992 1

‘Assertion, not assimilation: a feminist perspective on the normalisation principle’ Brown and Smith 1992 1

1993 1

‘The Influence of Normalisation on Psychiatric Services’ Carson et al 1993 1

‘Dark Shadows on a White Wall: A Black Perspective on Wolfensberger’s Theory of Normalization’ Bano et al 1993 1

1994 1

‘The Role of Normalization in Psychiatric Rehabilitation: An Empirical Investigation’ Carson et al 1994 1

SRV/VRS Journal Volume 1 number 1, 1994 1

W. Wolfensberger and S. Thomas. An analysis of the client role from an SRV perspective. 1

R.J. Flynn. De la normalisation à la VRS: Évolution et impact entre 1982- 1

1992. 1

M. Kendrick. Some reasons why SRV is important. 1

A. Dupont. VRS et santé mentale: le rôle du travailleur productif dans l’entreprise social. 1

J.-P. Nicoletti. L’.valuation et ses enjeux dans le développement de la VRS. 1

Classic Article: S. Thomas and W. Wolfensberger. The importance of social imagery in interpreting societally devalued people to the public. 1

Artcle Classique: S. Thomas and W. Wolfensberger (Traduit par A.Dionne). L’importance de l’imagerie sociale dans l’interprétation de personnes dévalorisées socialement au public 1

R. Lemay. Problems of discourse concerning roles. 1

M. Steer. Wolfensberger: Tales from the twilight zone. 1

R. Lemay. L’éloge de l’exhubérance: une critique de l’hyperactivité. 1

A review of J. Durand’s "The Affirmative Enterprise." 1

A review of Lutfiyya et al.’s "A question of community: quality of life and integration in small residential units and other residential settings." 1

A review of Shaddock and Zilber’s "Current service ideologies and responses to challenging behavior: Social Role Valorization or Vaporization." 1

A review of John Horgan’s "Eugenics revisited." 1

A review of D. Bowman’s "Disability and gender: community care." 1

SRV Council: Statements of definition, Identity and Functioning 1

SRV/VRS Journal Volume 1 number 2, 1994: 1

Wolf Wolfensberger & Susan Thomas Constraints and Cautions in Formulating Recommendations to a Service Especially in the Context of an External PASS or PASSING Evaluation 1

Jacques Pelletier Stratégies et Partenariats dans l'Actualisation de l'Identité Professionnelle du Travailleur qui Présente un Handicap Mental 1

Susan Thomas A Brief History of the SRV Development, Training and Safeguarding Council 1

Classic article from 1969: Bengt Nirje The Normalization Principle and its Human Management Implications 1

Article classique de 1969: Bengt Nirje Le Principe de Normalisation et ses Implications dans le Maniement du Comportement Humain 1

Opinions 1

Jack Yates John McKnight and the Fallible Community 1

John O'Brien Nobody Outruns the Trickster 1

Wolf Wolfensberger What is Grey Integration, and Is it Good or Bad? 1

Wolf Wolfensberger Qu'est ce que l'Intégration Grise, Est-ce Bon ou Mauvais? 1

John DuRand How Do We Measure Social Success? 1

Susan Thomas Some Thoughts About SRV Evoked by Events Commemorating the 50th Anniversary of D-day 1

CMHERA A Review of the Conference - 25 Years of Normalization SRV and Social Integration -held in Ottawa (CANADA) May 1994 1

Raymond Lemay A Reikjavik Journal 1

Raymond Lemay Ed Roberts, and the World Institute on Disabilities 1

Review of the "Standard Rules on the Equalization of Opportunities for Persons with Disabilities" 1

Review of "Agenda for Real Life" 1

Review of "Down Stairs that are Never Your Own" 1

Review of "Impact of Federal Regulations" 1

Review of "Social Integration in Barbados" 1

Review of "Housing and Supports for Persons with Mental Illness" 1

Review of "Drugs: A Case for Normalization" 1

Review of "Putting People First" 1

Review of "Normalisation: Theory and Practice" 1

Review of "What if...: A plea to Professionals to consider the Risk Benefit Ratio of Facilitated Communication" 1

Review of "Her Shoes are Brown and Other Stories" 1

Review of "I'm Not Handicapped--I'm Different" 1

SRV News and Reviews Wolf Wolfensberger 1

Annotations et Nouvelles: la VRS en Bref Wolf Wolfensberger 1

‘A Ordinary Sexual Life?: A review of the normalisation principle as it applies to the sexual options of people with learning disabilities’ Brown 1994 1

‘Deconstructing Social Role Valorization’ Bleasdale ?1994 CHECK 1

‘The Growing Threat to the Lives of Handicapped People in the Context of Modernistic Values’ Wolfensberger 1994 ? 1

‘An Analysis of the Client Role from a Social Role Valorization Perspective’ Wolfensberger and Thomas 1994 1

‘A Brief Introduction to SRV…’ ‘The Monograph’ 3rd Ed. 1

1995 1

‘Heading Toward Normal: Deinstitutionalization for the Mentally Retarded Client’ Whitman 1995 1

1996 1

SRV/VRS Journal Volume 2 number 1, 1996 1

Deborah Reidy Practices of Mental Health Programs Considered Stigmatizing by Consumers/Survivors: Consistency with Social Role Valorization 1

Wolf Wolfensberger & Susan Thomas The Problem of Trying to Incorporate a Model Coherency Analysis into a PASSING Assessment 1

Wolf Wolfensberger Reply To John O’Brien’s "Nobody outruns the trickster: A brief note on the meaning of the word ‘Valorization’" 1

Opinions 1

Jack Yates Storystealing & Storytelling 1

Raymond Lemay "Get clothes to support your intentions" 1

Joe Osburn What Makes A Good Passing Team Leader? 1

Susan Thomas Recent News Vignettes on the Power of Valued Social Roles 1

Reviews: 1

Susan Thomas A Review and Some Reflections on Some Early Writings on Social Roles 1

A Review of Forrest Gump Judith Sandys 1

A Review of "Normalization and deinstitutionalization of mentally retarded individuals: Controversy and facts" Wolf Wolfensberger 1

Comment On "Is It Still The ‘Person First,’ Then The Disability?" Joe Osburn 1

SRV Council: How the SRV Council Relates to Other SRV Bodies & Groups 1

SRV News and Reviews Wolf Wolfensberger 1

Annotations et Nouvelles: la VRS en Bref Wolf Wolfensberger 1

SRV/VRS Journal Volume 2 number 2, 1996 1

Wolf Wolfensberger, Susan Thomas & Guy Caruso Some of the Universal "Good Things in Life" Which the Implementation of SRV Can be Expected to Make More Accessible to Devalued People 1

Raymond Lemay La VRS et le principe de normalisation 1

Article classique de 1980: Wolf Wolfensberger Recherche, Empirisme et le Principe de Normalisation 1

Classic article from 1980: Wolf Wolfensberger Research Empiricism and the Principle of Normalization 1

Opinions 1

Jack Yates Human service anarchism and A tale of two bridges 1

Raymond Lemay Throwing slippers and other role behaviors: Eliza Doolittle becomes a lady 1

Susan Thomas Some further thoughts on SRV prompted by recent news items 1

Review of Doug's Story: The Struggle for a Fair go Judith Sandys 1

Review of When Billy Broke his Head Guy Caruso 1

Review of Developing Leisure Identities Susan Thomas 1

The column/la chronique: 1

SRV News and Reviews Wolf Wolfensberger 1

Annotations et Nouvelles: la VRS en Bref Wolf Wolfensberger 1

Letter: A response to Wolfensberger's response to O'Brien 1

‘Increased Value- Implications of Normalisation for Mental Illness Services’ Brandon 1996 1

‘If This Then That’ Wolfensberger 1995 1

1997 1

1998 1

SRV/VRS Journal Volume 3 number 1, June 1998 1

Michael Steer - The Old Commodore of Sydney Cove 1

Joe Osburn - An Overview of Social Role Valorization Theory 1

Paul Williams - New PASS Subscores 1

Tony Wainwright - Social Psychology and SRV 1

Article classique : John McKnight - Le professionnalisme dans les services : un secours abrutissant 1

Classic article : John McKnight - Professionnalized Service and Disabling Help 1

Jack Yates - On Jean Vanier 1

Peter Millier - The Struggle for a "Real" Life 1

Review of Chappell’s "Towards a Sociological Critique of the Normalization Principle" by Wolf Wolfensberger and Susan Thomas 1

Review of Weiss and Kasmauski’s "Aging: New Answers to Old Questions" by Raymond Lemay 1

Recension de "Toute personne est une histoire sacrée" de Jean Vanier par Raymond Lemay 1

SRV News and Reviews Wolf Wolfensberger 1

Annotations et Nouvelles: la VRS en Bref Wolf Wolfensberger 1

1999 1

SRV/VRS Journal Volume 3 number 2, December 1999 1

Christine Wilson & Cheryl Reed - Choice, Self-determination and Autonomy 1

SRV Council - Motives of Trainers 1

SRV Council - Legitimization of SRV Trainers 1

Jack Yates - Deinstitutionalization and Deception 1

Alan Rudman - SRV and Attribution Theory 1

Paul Williams - The Fascinating World of Imagery 1

Jessica Downton et Raymond Lemay - Qu’adviendra-t-il des enfants de l’État? 1

Jessica Downton & Raymond Lemay - What will become of the children of the state? 1

Paul Jenkins - A Proposal For Better Dissemination Of SRV Principles 1

Raymond Lemay - Inclusion, integration and the Olympics 1

Susan Thomas - An American Take on a British Experience 1

Raymond Lemay - Pushed out of the Nest 1

Wolf Wolfensberger - SRV News and Reviews 1

Wolf Wolfensberger - Annotations et Nouvelles: la VRS en Bref 1

‘A Quarter Century of Normalization and SRV: Evolution and Impact’ 1

‘Normalization and Social Role Valorization at a quarter-century: Evolution, impact, and renewal’ Flynn and Lemay 1999 1

‘How I Came to Formulate the Normalization Principle’ Nirje 1999 1

‘A contribution to the history of Normalization, with primary emphasis on the establishment of Normalization in North America between 1967-1975’ Wolfensberger 1999 1

The North American formulation of the principle of Normalization’ Yates 1999 1

‘An overview of Social Role Valorization’ Thomas and Wolfensberger 1999 1

‘Capitalism, disability and ideology: A materialist critique of the Normalization Principle’ Oliver 1999 1

‘Response to Professor Michael Oliver’ Wolfensberger 1999 1

‘The original "Scandinavian" Normalization principle and its continuing relevance for the 1990s’ Perrin 1999 1

‘Are Normalization and Social Role Valorization limited by competence?’ Heal 1999 1

‘Roles, identities, and expectancies: Positive contributions to Normalization 1

and Social Role Valorization’ Lemay 1999 1

‘Normalization and residential services: The Vermont studies’ Burchard 1999 1

‘Integration of persons with developmental or psychiatric disabilities: Conceptualization and measurement’ Flynn and Aubry 1999 1

‘"It does my heart good": How employers perceive supported employees’ Sandys 1999 1

‘A comprehensive review of research conducted with the program evaluation instruments PASS and PASSING’ Flynn 1999 1

‘Historical background and evolution of Normalization-related and Social Role Valorization-related training’ Thomas 1999 1

‘Education in applying the principle of Normalization as a factor in the practical Arts of improving services for people with disabilities O’Brien 1999 1

‘The impact of Normalization and Social Role Valorization in Scandinavia’ Kristansen 1999 1

‘The origin of the Normalization principle in Sweden and its impact on legislation today’ Hollander 1999 1

‘Social integration in a welfare state: Research from Norway and Sweden’ Kristansen< Soder and Tossebro 1999 1

‘The impact of Normalization and Social Role Valorization in the English-speaking world’ Kendrick 1999 1

‘The impact of Normalization and Social Role Valorization in Canada’ Blanchet 1999 1

‘The impact of Normalization and Social Role Valorization in the United 1

Kingdom’ Wainwright 1999 1

‘Normalization and Social Role Valorization in Australia and New Zealand’ Millier 1999 1

‘The impact of Normalization and Social Role Valorization in francophone countries and communities from the late 1960s to the 1990s’ Pelletier 1999 1

‘The impact of Social Role Valorization on government policy in Quebec’ Dionne 1999 1

‘The impact of Normalization and Social Role Valorization on my life’ Park and French 1999 1

‘The personal impact of Normalization-related and Social Role Valorization-related training’ Osbourne 1999 1

‘The impact of Normalization and Social Role Valorization on a state-level practitioner from the USA’ Scwartz 1999 1

‘Concluding reflections and a look ahead into the future for Normalization and Social Role Valorization’ Wolfensberger 1999 1

‘A comprehensive bibliography on Normalization, Social Role Valorization, PASS, and PASSING, 1969-1999’ St-Dennis and Flynn 1999 1

‘SRV The English Experience’ Race 1999 1

2000 1

2001 1

SRV/VRS Journal Volume 4, numbers 1 & 2, December 2001 1

Deborah Reidy—Interviews with Gunnar Dybwad 1

Wolf Wolfensberger—The Problematic Nature of the Victim Role 1

Louis Vaney—Du principe de la normalisation à la VRS 1

Selected papers from the 2nd International Conference of SRV—Boston 1999: 1

Creating Possibilities: The Difference Social Role Valorization Makes 1

Fiona Cameron-McGill & Trudy Van Dam—Staying True to SRV 1

Jane Sherwin—Classrooms, Camps and Canteens 1

Fran Hartnett—A Brief Social History Of SRV New Zealand 1

Susan Thomas—Reading SRV Lessons from the Ordinary Media 1

Michael J. Kendrick—The Developmental Challenges for the Future of SRV 1

A Symposium on Developing New Leadership: 1

Joe Osburn—The Challenge of Developing New Leadership 1

Bill Forman—Perspectives on the SRV Culture 1

Theresa White-Lightner—One Perspective from a Relative Newcomer 1

Jan Doody—Some Thoughts on the Aging of the SRV Movement 1

Deborah E. Reidy—Reflections on "the Movement" 1

Review 1

Raymond Lemay—Good intentions and hard work are not enough 1

‘The Trojan Horse Effect: The Client Role and its Impact on Integration’ Reidy 2001 1

2002 1

Historiography of Precursors to SRV and Normalization

1966

‘Dehumanization and the Institutional Career’ Vail 1966

·

Historiography of Normalization and SRV

· The following section comprises an annotated bibliography of major papers on Normalization and SRV.

· Currently it is attached to Section 0 as I take notes, But eventually it will become Section 19.

1969

‘Christmas in Purgatory’ Blatt and Kaplan 19??

· Get reference and order.

‘The Evolution of Dehumanization in Our Institutions’ White and Wolfensberger 1969

· Written by Wesley D White and Wolf Wolfensberger.

· Abstract:

‘The origins and evolution of dehumanizing practices in public institutions for the mentally retarded in the United States are traced and discussed. At first, these practices appear to have reflected cultural attitudes towards deviancy in general, but today, the values of the general public appear to be more advanced than the values of those who control institution practices.’

· Refers to The Origin and Nature of our Institutional Models and so may be best read together with this publication, either in its original form in Kugel and Wolfensberger, or in the Monograph format.

· Deviancy and Mental Retardation is mentioned and sourced to Wolfensberger’s above paper:

‘In this review, attention was drawn to a theoretical construct which appears to have considerable utility in coming to an understanding of the history of our institutions. This is the concept of deviancy which has lately gained considerable ascendancy in sociological thinking. If a person is significantly different from others, and if this difference is viewed as having negative value, then the person can be said to be deviant. Almost by definition, mentally, retarded persons are deviants, and many are stigmatized by, overt signs of their deviancy which elicit negative social reactions.’

· Common ways of dealing with deviancy:

‘Historically, there have been four common ways in which society has dealt with deviancy, and these have been to prevent, reverse, segregate or isolate, or destroy it. Our institu-tions for the retarded were origi-nally created in order to reverse the deviancy of their residents; later, goals changed toward prevention by means of segregation.’

· Prevent,

· Reverse,

· Segregate or Isolate,

· Destroy.

· Making the deviant undeviant- 1850-1880 in residential facilities. Pioneers were Seguin, Howe, Wilbur etc.. Small scale services involved in education and training. Remarkably successful in achieving their purpose.

· Sheltering the deviant from society- 1870-1890. Shelter turning to warehousing.

· Protecting society from the deviant- 1880-1900. Mental retardation seen as a menace, malignant growth on society. Laws passed on marriage and sterilisation. Monies cut back and little rehabilitation attempted.

‘It became the consensus of the professionals in the field to isolate and warehouse the retarded deviant as inexpensively as possible for life, to prevent his reproduction, and thereby exterminate the problem.’

· They note the work of Vail and point out that conditions in Mental Retardation facilities were much worse than in the Mental Illness facilities that Vail considered.

· Loss of rationales- between 1918 and 1925, the idea of the retardate as a menace to society retreated, but the institutional response remained much the same.

‘PASS 1’ ?Author 1969

· Was published in Nebraska in 1969 according to the copyright information to PASS 3.‘The Principle of Normalization and its Implications for Psychiatric Services’

GATHER INFORMATION AND SUMMARISE

‘Changing Patterns in Residential Services for the Mentally Retarded’ Kugel and Wolfensberger 1969

· Kugel and Wolfensberger edited this seminal work which was published in 1969.

· The President’s Committee on Mental Retardation had been set up by President Johnson’s administration as a successor to President Kennedy’s Panel on Mental Retardation which produced a report in 1962 followed by several subcommittee reports.

· The Committee requested Kugel to compile a resource package on residential services for the mentally retarded in the US.

· ‘Changing Patterns’ was the final result. It collected together a selection of papers pertinent to Normalisation.

· This book also includes the first publication of The Origin and Nature of Our Institutional Models (Wolfensberger 1969 In Kugel and Wolfensberger) and is described separately below.

·

·

TABLE OF CONTENTS OF KUGEL, R. B., & WOLFENSBERGER, W. (EDS) (1969)

‘CHANGING PATTERNS IN RESIDENTIAL SERVICES FOR THE MENTALLY RETARDED’

Part I: Challenge

l. Why Innovative Action?

Robert B. Kugel, University of Nebraska, College of Medicine

Part II: Situation

2. Basic Facts About Public Residential Facilities for the Mentally Retarded Earl C. Butterfield, University of Kansas Medical Center

Part III: Reactions to Current Residential Models in the United States

3. Purgatory

Burton Blatt, Massachusetts Department of Mental Health

4. A Scandinavian Visitor Looks at US Institutions

Bengt Nirje, Swedish Association for Retarded Children

Part IV: History and Development

5. The Origin and Nature of Our Institutional Models

Wolf Wolfensberger, University of Nebraska, College of Medicine

Part V: Toward New Service Models

6. Recommendations for Institutional Reform

Burton Blatt, Massachusetts Department of Mental Health

7. The Normalization Principle and Its Human Management Implications

Bengt Nirje, Swedish Association for Retarded Children

8. Residential Services Within the Service Continuum

Jack Tizard, University of London Institute of Education

9. Small, Special-Purpose Residential Facilities for the Retarded

Lloyd M. Dunn, George Peabody College for Teachers

Part VI: Model Service Models

10. A Metropolitan Area in Denmark: Copenhagen

N. E. Bank-Mikkelsen, Danish National Service for the Mentally Retarded

11. A Rural County in Sweden: Malmohus County

Karl Grunewald, Swedish National Board of Health and Welfare

12. An Urban-Rural Area in Britain: Essex County

David Norris, Bournemouth College of Technology

13. A Densely Populated Small State: Connecticut

M. Michael Klaber, University of Hartford

Part VII: Toward New Service Concepts

14. The Creation of Settings

Seymour B. Sarason, Yale University

15. The Free Choice Principle in the Care of the Mentally Retarded

Robert E. Cooke, The Johns Hopkins University School of Medicine

16. A New Approach to Decision-Making in Human Management Services

Wolf Wolfensberger, University of Nebraska, College of Medicine

Part VIII: Overview

17. Action Implications, USA Today

Gunnar Dybwad, Brandeis University

‘Why Innovative Action?’ Kugel

·

FOR REVIEW

‘Basic Facts About Public Residential Facilities for the Mentally Retarded’ Butterfield

FOR REVIEW

‘Purgatory’ Blatt

FOR REVIEW

'A Scandinavian Visitor Looks at US Institutions' Nirje 1969

· This brief article gives an outsider’s approach to conditions in US institutions for the Mentally Retarded. At the time of writing, Scandinavia had provided ‘better institutions’ (which impressed Wolfensberger (see REFERENCE).

· The information is now well known but is worth reading for a contemporaneous account by a trusted outside interpreter.

· Nirje mentions Blatt and Kaplan’s Christmas in Purgatory which should probably be viewed alongside this article. Purgatory by Burton Blatt is a written record of conditions in those institutions and is reviewed later in this section as a chapter of Kugel and Wolfensberger.

‘The Origin and Nature of Our Institutional Models’ Wolfensberger 1969

· Text believed to be similar or identical to monograph of the same title dated 1973 (on the subject by the same author). Reviewed here from that later source.

TABLE OF CONTENTS FOR WOLFENSBERGER ‘THE ORIGIN AND NATURE OF OUR INSTITUTIONAL MODELS’

CHAPTER 1 THE LANGUAGE OF ARCHITECTURE

The Perception of the Retarded Person's Role as a Determinant of the Institutional Models The Retarded Person as Sick

The Retarded Person as a Subhuman Organism

The Retarded Person as a Menace

The Retarded Person as an Object of Pity

The Retarded Person as a Burden of Charity

The Retarded Person as a Holy Innocent

The Retarded Person as a Developing Individual

Other Roles of Retarded Persons

The Meaning of a Building

The Building as a Monument

The Building as a Public Relations Medium

The Building as a Medium of Service

The Focus of Convenience of a Building

The Convenience of the Architect

The Convenience of the Community

The Convenience of the Staff

The Convenience of the Resident

CHAPTER 2 THE EVOLUTION OF INSTITUTIONAL MODELS IN THE UNITED STATES

Making Deviant Individuals Undeviant

Protecting Deviant Individuals from Nondeviant People

Protecting Nondeviant Individuals from Deviant People

The Early Indictment

The Peak of the Indictment

Dehumanizing and Brutalizing Elements of the Indictment

Concern with Prevention

Failure of Preventive Marriage Laws

Failure of Preventive Sterilization

Failure of Preventive Segregation

Failure to Support Community Alternatives to Segregation

The End of the Indictment

Momentum Without Rationales

CHAPTER 3 THE REALITIES OF INSTITUTIONAL ACCOMPLISHMENTS

·

HISTORY OF THIS ON P68FF OF FLYNN LEMAY

·

· History of the document from the footnote to the foreword:

‘This essay evolved from a series of lectures and an address given before the Wisconsin Association for Retarded Children; Janesville, Wisconsin. May 1967. The writing of tbe Paper was supported by USPHS Grant HD00370v from the National Institute of Child Health and Human Development. I am indebted to my colleagues Psychiatrist Frank Menolascino and Sociologist Richard A. Kurtz (now at Notre.Dame University) for inspiration and critical reading of earlier drafts.’

· Notes on Chapter 1:

· Early use of role theory:

‘…the role expectancies the building design and atmosphere impose on prospective residents, …

And one’s image of the retarded person has definite implications to one’s conceptualization of the residential service model appropriate for people cast into the retarded role. … It is a well-established fact that a person’s behaviour tends to be profoundly affected by the role expectations that are placed on him. Generally, people will play roles that they have been assigned. This permits those who define social roles to make self-fulfilling prophecies by predicting that someone cast into a certain role will emit behavior consistent with that role. Unfortunately, role-appropriate behavior will then often be interpreted to be a person’s ‘natural’ rather than elicited mode of acting.'

· Historical means for handling deviancy:

· Prevention

· Making Undeviant

· Segregating

· Destroying

· Notes on Prevention- the deviancy itself can be prevented by changing the values of a society. Wolfensberger gives the examples of the Medieval Catholics and the recent Hutterites who do not place great value on intellect, and so do not find simple retardation as deviant.

· Notes on Making Undeviant- education, training and treatment.

· Notes on Segregating-

‘Deviant groups, being perceived as unpleasant, offensive or frightening can be segregated from the mainstream of society and placed at its periphery. We have numerous example of this in our society: we segregate Indians in reservations, and Negroes in the ghetto; the aged are congregated in special homes, ostensibly for their own good, and these homes are often located at the periphery of our communities or in the country; deaf and blind children who could be taught in the regular schools are sent to residential schools, many of which are on the periphery of, or remote from population centers; we have (or have had) ‘dying rooms’ in our hospitals to save us the unpleasantness of ultimate deviancy; and the emotionally disturbed and retarded may be placed in institutions far in the countryside.’

· Notes on Destroying-

‘In the past, some kinds of deviancy were seen to be the work of the devil or other evil forces. As such, the deviant person was evil too, and had to be persecuted and destroyed so as to protect society. Destruction of deviant individuals may also be advocated for other reasons such as self-preservation or self-protection. For instance, many societies have condoned the destruction of weaker, less adequate, or handicapped members. This was true of ancient Greece and Rome, of the Eskimos and bushmen, and of Nazi Germany. In the United States, the increasing sentiment for, and legalization of, abortion of high-risk fetuses can be viewed, at least in part, as a variant of this theme.’

· Deviancy Roles:

· The Retarded Person as

· Sick

· Subhuman Organism

· Menace

· Object of Pity

· Burden of Charity

· Holy Innocent

· Later mentions the role of Object of Ridicule, but does not cover in depth.

· Contrasts with non-deviant role:

· The Retarded Person as:

· Developing Individual

· (Developmental Model)

· Meanings of a Building:

· As a Monument

· As a Public Relations Medium

· As a Medium of Service

· The Convenience of a Building

· The Convenience of the Architect

· The Convenience of the Community

· The Convenience of the Staff

· The Convenience of the Resident.

· Notes on Chapter 2:

· Making Deviant Individuals Undeviant:

‘The pioneers did not so much speak of making ‘idiots’ normal, as ‘educating the idiot.’’

· Wolfensberger notes that the early institutions were placed at the heart of the community.

· Wolfensberger notes:

‘Essentially, making the deviant person undeviant implied a developmental model’

· Protecting Deviant Individuals from Nondeviant People:

· Wolfensberger notes four problems with the rehabilitation model:

· There were bound to be failures

· For every resident discharged, the replacement was likely to be less successful

· Many residents who were partially habilitated had no place to go to

· People had too high an expectation of such rehabilitation programs.

· Wolfensberger notes that the term school began to be replaced by the term asylum in program titles.

· Wolfensberger notes:

‘The Institution was no longer to be a school, but a shelter, an asylum of happiness, a garden of Eden for the innocent.’

· Wolfensberger notes:

‘The protective residential model emphasized benevolent shelter, but it bore the seeds of three dangerous trends: (1) isolation, (2) enlargement and (3) economization.’

· Protecting nondeviant people from deviant people:

‘The image of the retarded as a social menace grew in a subtle way.’

· Strict segregation in institutions grew out of the background of the restrictive marriage laws and forced segregation (and their failures).

· This section is a comprehensive history of the development of the institution through the late nineteenth and early twentieth century.

· The Realities of Institutional Accomplishments:

· A summary of the effects of the asylums on the individuals.

· Appendix 2 lists the origins of some institutional features:

· Monotony of design

· Broken flight staircases to avoid falls

· No sharp corners on woodwork

· All radiators and steam pipes to be covered

· Physical Exclusion of the most challenged within the institution

· Electric light switches outside rooms

· Extra strong plaster

· Hot water supply adequate for large scale simultaneous bathing

· Standardisation for cheapness of repair

· Terrazzo flooring rather than linoleum or rubber

· Concrete stairs

· Wolfensberger notes that the specification for the staff quarters is considerably more normal.

‘Recommendations for Institutional Reform’ Blatt

FOR REVIEW

‘The Normalization Principle and Its Human Management Implications’ Nirje

· This is probably the first published statement in English of Nirje’s ideas on Normalization.

· He summarizes Normalization as:

‘My entire approach to the management of the retarded, and deviant persons generally, is based on the "normalization" principle. This principle refers to a cluster of ideas, methods, and experiences ex-pressed in practical work for the mentally retarded in the Scandinavian countries, as well as in some other parts of the world. The normaliza-tion principle underlies demands for standards, facilities, and programs for the retarded as expressed by the Scandinavian parent movement.’

· It is clear from this statement that, despite later criticisms by Wolfensberger among others, Nirje envisaged Normalization as a theory applicable to other deviant groups and not just to those with Mental Retardation.

· He quotes Bank-Mikkelson:

‘to let the mentally retarded obtain an existence as close to the normal as possible.’

· He then goes on to describe in detail how the conditions of people with mental retardation may be ameliorated by using the principle of normalization.

· In an appendix he describes Law 940 of the Swedish Code of Statutes which he says can be seen as an expression of the normalization principle. There are a wide variety of quotes from this law given in this appendix.

‘Residential Services Within the Service Continuum’ Tizard

FOR REVIEW

‘Special-Purpose Residential Facilities for the Retarded’ Dunn

FOR REVIEW

‘A Metropolitan Area in Denmark: Copenhagen’ Bank-Mikkelson

FOR REVIEW

‘A Rural County in Sweden: Malmohus County’ Grunewald

‘An Urban-Rural Area in Britain: Essex County’ Norris

FOR REVIEW

‘A Densely Populated Small State: Connecticut’ Klaber

FOR REVIEW

‘The Creation of Settings’ Sarason

FOR REVIEW

‘The Free Choice Principle in the Care of the Mentally Retarded’ Cooke

FOR REVIEW

‘A New Approach to Decision-Making in Human Management Services’ Wolfensberger

FOR REVIEW

‘Action Implications: USA Today’ Dybwad

FOR REVIEW

1970

‘The Principle of Normalization and Its Implications to Psychiatric Services’ Wolfensberger 1970

· In 1970 Wolfensberger published the paper ‘The Principle of Normalization and its implications for psychiatric services’ FOR CONTEXT SUMMARISE. SEE p88

·

SUMMARIZE

‘The Normalization Principle- Implications and Comments’ Nirje 1970

· The paper was part of a ‘Symposium on "Normalization"’ in the British Journal of Mental Subnormality. Articles by Gunzberg and Zarfas, the other two parts of the published work from this symposium, are reviewed below.

· He outlines the principle:

‘The application of the normalization principle will not "make the subnormal normal" but will make life conditions of the mentally subnormal normal as far as possible bearing in mind the degree of his handicap, his competence and maturity, as well as the need for training activities and availability of services. Thus aims of care and services as well as goals of training - in striving to develop a better adjustment to society-are also part of the normalization principle. The realistic appraisal of the degree of handicap, the fluctuating social conditions and demands and the awareness that mostly only relative independence and integration can be attained are implied and stressed by the words "as close to the normal as possible".’

· He also includes a summary of his view of mental subnormality, stressing the cognitive impairment, the imposed or acquired aspects, and the awareness aspects of the condition:

‘(I) The mental subnormality of the individual: the cognitive handicap associated with impairment in adaptive behaviour, learning difficulties, difficulty in meeting demands imposed by repetitious, new experiences and complex situa-tions, frustrations due to failures, Iack of ability to communicate often aggra-vated by absence of patience.

(2) The imposed or acquired subnormality: as expressed in behavioural mis-func-tioning or under-functioning, due to possible deficiencies in their environment or in the conditions of life created by society or the unsatisfactory attitudes of parents, personnel or people in general. Institutional poverty, non-existing or unsatisfactory education or vocational training, Iack of experiences and social contacts, etc., etc., add to the primary handicap.

(3) The awareness of being mentally handicapped: as possibly leading to dis-torted self-concepts, defence mechanisms, closing in on inner problems and defeatisfic allowances. Self-assertion in one's own eyes and those of others might prove difficult for many normal people, but when saddled with the awareness of being mentally handicapped and the inability to understand oneself the task becomes near impossible.’

· This conception of mental subnormality is particularly close to the concept of social construction of the condition which is discussed later.

· The remainder of the article gives a summary of the various headings within the Normalization Principle:

· Normal Rhythm of the Day

· Normal Weekly Rhythm

· Normal Rhythm of the Year

· Normal Developmental Experiences of the Life Cycle

· Choices, Wishes, and Desires of the Mentally Subnormal have to be respected

· Living in a bisexual world

· Normal Economic Standards

· Standards of Physical Facilities

The Hospital as a Normalizing Training Environment Gunzberg 1970

· This article was published as part of a ‘Symposium on "Normalization"’ in the British Journal of Mental Subnormality.

· The paper makes a claim for using the hospital as a means to reach normalisation goals, although admitting that this requires some non-normalised means.

REVIEW

‘Moving toward normalcy’ Zarfas 1970

· This article was published as part of a ‘Symposium on "Normalization"’ in the British Journal of Mental Subnormality.

REVIEW

1971

1972

‘The Right to Self-determination’ Nirje 1972

· Published as a chapter in Normalization- The Principle of Normalization in Human Services (Wolfensberger 1972).

· Chapter sub-headings and summaries:

· ‘Action by the unimpaired on behalf of the impaired’- a consideration of the moral ramifications of action taken by the unimpaired and their reactions to the impaired, and the feelings and expressions of the impaired persons themselves.

· ‘Self-assertion by the impaired’- Notes that people with mental retardation are severely socially inhibited by societal conventions and that decisions are often taken on their behalf by parents or other unimpaired people. Argues for greater recognition of the rights of the impaired.

· ‘Social training for self-assertion’- discusses means for increasing the ability to take part in Self-determination and considers the barriers to this.

· ‘Social training for equality through special community experience courses

· ‘Social training for independence through social clubs’

· ‘Social training through parliamentary procedures’

· An historic step toward self-determination: the Malmo Congress of the Retarded

· ‘Are self-directing groups of the handicapped segregating?’

· ‘Various frameworks for self-directing groups of the handicapped’

· ‘Self-determination for the retarded as a test case for other devalued groups’

· Appendix: ‘Summary of the proceedings of the National Conference of retarded, young adults - in Malmo, Sweden, May 8-10, 1970’

‘Normalization- The Principle of Normalization in Human Services’ (The Big Red Dot) Wolfensberger (ed) 1972

·

TABLE OF CONTENTS FOR WOLFENSBERGER W, ‘NORMALIZATION- THE PRINCIPLE OF NORMALIZATION IN HUMAN SERVICES’

DEFINING THE NORMALIZATION PRINCIPLE AND ITS MAJOR IMPLICATIONS

1 The role of ideology in shaping human management models

2 The concept of deviancy in human management

3 The principle of normalization as a human management model: evolution of a definition

4 Typical programmatic and architectural implications of the normalization principle

5 Societal integration as a corollary of normalization

APPLICATION OF NORMALIZATION PRINCIPLES TO SPECIFIC PROBLEM AND SERVICE AREAS

6 Additional architectural-environmental implications of the normalization principle

7 Additional implications of the normalization principle to residential services

8 Implications in the field of mental health

9 Normalizing activation for the profoundly retarded and/or multiply handicapped

10 Reconciling behavior modification procedures with the normalization principle

Philip Roos

11 Changing vocational behavior through normalization

Simon Olshansky

12 Meeting the socio-sexual needs of severely impaired adults

13 The right to self-determination

Bengt Nirje

14 The dignity of risk

Robert Perske

15 Dignity and risk: a further reflection

SPECIAL IMPLEMENTIVE STRATEGIES AND MECHANISMS

16 Some safeguards for integrative services

17 Normalization via citizen advocacy

18 Normalization via agency performance assessment and differential funding

19 Miscellaneous other implementive strategies and mechanisms

Chapters by Wolfensberger unless otherwise noted.

· Edited by Wolf Wolfensberger and published in 1972. Includes papers mostly by Wolfensberger, but also by Nirje, Olshansky, Perske and Roos.

· It was identified in 1991 as the single most influential publication on Mental Retardation in the previous fifty years. Wolfensberger gives the history of this publication, noting that it originated in individual papers of his which were not being readily accepted through the peer review process. He notes that it was not possible to interest a major publisher for the work, and it was published by the Canadian Association for the Mentally Retarded.

· Known humorously as ‘The Big Red Dot’.

SUMMARIZE

· Summary of Contents:

· Introduction: Wolfensberger states the plan for the book:

‘At this point, I want to state the three goals that this book is intended to achieve: to explain, clarify, and elaborate the principle of normalization as a system of human management; to `translate' it from its Scandinavian origins so as to make it fully relevant to the North American scene; and to bring the principle to the attention of a broad range of human management disciplines.

In part A of the book, the normalization principle will be presented in its universal nature. Part B will contain illustrative elaborations of the applica-tion of the principle to a number of specific problem areas or issues. Since the principle has universal application in all of the human management areas discussed above, including even areas that interact with human management, such as architecture, it is to be expected that additional elaborations will be forthcoming in time. The ones presented here are intended to be primarily illustrative. In part C, some of the strategies and mechanisms for implemen-ting normalization will be presented.’

The Big Red Dot Chapters by Wolfensberger

REVIEW AND EXPAND THE FOLLOWING BRIEF SUMMARIES

· Chapter 1 ‘The role of ideology in shaping human management models’: An early statement of Wolfensberger’s ideas of the relationship between Ideologies and the Sciences. WORTH GOING BACK TO FOR CRITIQUES.

· Chapter 2 ‘The concept of deviancy in human management’: This Chapter outlines Wolfensberger’s approach to Deviancy and introduces the ‘Major Historic Roles of Deviant Persons’.

· These Historic Roles are listed as:

· Subhuman Organism

· Menace

· Unspeakable Object of Dread

· Object of Pity

· Holy Innocent

· Diseased Organism

· Object of Ridicule

· Eternal Child

cf. Latest list of Historic Roles- Comment, also dirt and discard

· An early reference to methods of handling deviancy- destruction, segregation, reversal of condition or prevention of the condition.

· An early reference to what became known as death-making.

· Chapter 3 The principle of normalization as a human management model: evolution of a definition. This short chapter gives a brief history of the Scandinavian model of Normalization and an introduction to the proposed reformulation for the US. Wolfensberger then gives the definition of his reformulation of normalization:

‘Utilization of means which are as culturally normative as possible, in order to establish and or maintain personal behaviours and characteristics which are as culturally normative as possible.’

· This is compared with Nirje’s formulation:

‘making available to the mentally retarded patterns and conditions of everyday life which are as close as possible to the norms and patterns of the mainstream of society.’

· Chapter 4 Typical programmatic and architectural implications of the normalization principle.

· Describes the three levels of action that later became part of SRV. It describes Physical and Image Juxtaposition- ? for the first time. CHECK It describes the difference between Interaction and Interpretation ? for the first time. CHECK Role expectancy is mentioned ? for the first time. CHECK It also refers to ‘Pygmalion in the Classroom’.

· Chapter 5 Societal integration as a corollary of normalization

· Introduces Physical and Social Integration as topics. It also has a list of examples (now somewhat dated) of integrative opportunities.

· Chapter 6 Additional architectural-environmental implications of the normalization principle

· Covers in some depth the language of the built environment. Additionally it discusses the language of policies and procedures and the language of staff image and competence.

· Chapter 7 Additional implications of the normalization principle to residential services

· Considers the range of institutional responses to the need for ‘Home’. Gives the five major implications of Normalization: Integration, Smallness, Separation of Domicilary Function, Specialization, Continuity.

· Chapter 8 Implications in the field of mental health

REVIEW IN DEPTH LATER ALONG WITH THE PAPER ON SAME SUBJECT

· Chapter 9 Normalizing activation for the profoundly retarded and/or multiply handicapped

REVIEW LATER

· Chapter 12 Meeting the socio-sexual needs of severely impaired adults

REVIEW LATER

· Chapter 15 Dignity and risk: a further reflection

REVIEW LATER

· Chapter 16 Some safeguards for integrative services

REVIEW LATER

· Chapter 17 Normalization via citizen advocacy

REVIEW LATER

· Chapter 18 Normalization via agency performance assessment and differential funding

· References to the origins of PASS

REVIEW LATER

· Chapter 19 Miscellaneous other implementive strategies and mechanisms

· REVIEW LATER

Reconciling behavior modification procedures with the normalization principle Philip Roos

· Chapter 10

· REVIEW LATER WHEN LOOKING AT BM CRITIQUES

·

Changing vocational behavior through normalization Simon Olshansky

· Chapter 11

· REVIEW LATER WHEN LOOKING AT BM CRITIQUES

·

The right to self-determination Bengt Nirje

· Chapter 13

· Reviewed above under Nirje’s writings.

The dignity of risk Robert Perske

· Chapter 14

· The underpinnings of Social and Physical Overprotection

REVIEW LATER

·

·

1973

‘The Origin and Nature of Our Institutional Models’ Wolfensberger 1973

· This is a monograph publication which I believe to be identical in text to that under the same title in Kugel and Wolfensberger.

· Reviewed above

1974

‘Normalization and Behaviour Modification in the Workshop’ Brickey 1974

1975

‘PASS 3’ Wolfensberger and Glenn 1975/1978

· PASS 3 consists of two sets of Ratings- PASS and FUNDET. PASS asseses the Ideology and the Administration of the service. FUNDET assesses financial considerations.

· A list of the ratings for both PASS and FUNDET is given below:

·

List of Headings and Ratings for PASS3

1 Ideology

11 Normalization-related

111 Integration

1111 Physical integration

11111 Proximity

R111111 Local

R111112 Regional

R11112 Access

11113 Physical context

R111131 Physical

R111132 Program-neighborhood harmony

R11114 Congregation, and assimilation potential

1112 Social integration

11121 Socially integrative intepretations

R111211 Program. facility, and location names

111212 Building perception

R1112121 Function congruity image

R1112122 Building-neighborhood harmony

R111213 Deviancy image juxtaposition

R111214 Deviancy program juxtaposition

11122 Socially integrative program

111221 Deviant persons juxtaposition

R 1112211 Deviant staff juxtaposition

R1112212 Deviant client and other juxtaposition

R111222 Socially integrative social activities

112 Appropriate interpretations and

1121 Age-appropriateinterpretations and structures

R11211 Facilities, environmental design and appointments

R11212 Personal appearance

R11213 Activities, routines and rhythms

R11214 Labels and forms of address

R11215 Autonomy and Rights

R11216 Possessions

R11217 Sex behavior

1122 Culture-appropriate interpretations and structures

R11221 Internal design and appointments

R11222 Personal appearance

R11223 Activities, routines and

R11224 Labels and forms of address

R11225 Rights

R113 Model coherency

114 Developmental growth

R1141 Physical overprotection

R1142 Social overprotection

R1143 Intensity of relevant programming

R1154 Interactions

115 Quality of setting

R1151 Physical comfort

R1152 Environmental beauty

R1153 Individualization

R1154 Interactions

12 Ideology-related administration

R121 Comprehensiveness

R122 Utilization of generic resources

R123 Consumer and public participation

R124 Education of the public

R125 Innovativeness

13 Human science orientation

R131 Ties to academia

R132 Research climate

14 Regional priorities

R141 Deinstitutionalization

R142 Age group priorities

2 Administration

21 Manpower considerations

R211 Staff development

R212 Manpower development

22 Operational effectiveness

221 Internal administration

R2211 Administrative control and

R2212 Planning process

R2213 Program evaluation and renewal

222 Finance

R2221 Financial documentation-

R2222 Budget economy

FUNDET

R31 Continuation of funding

R32 Funding exploration

R33 Financial documentation -accuracy

34 Hardship factors

R341 Financial need

342 Socio-ecologic hardship

R3421 Socio-ecologic hardship-

R3422 Socio-ecologic hardship –impact

R343 Geo-demographic hardship

R35 Non-duplication –

R36 Service utilization

37 Funder priorities and requirements

R371 Client appropriateness

R372 Program appropriateness

R373 Consistency with funder policies and standards

DISCUSSION AND SUMMARY OF INSTRUMENT AND RATINGS.

1976

‘Changing Patterns…’ Kugel and Shearer 1976

· Full title is ‘Changing Patterns in Residential Services for the Mentally Retarded. President’s Commission on Mental Retardation, Washington DC 20201, 1976 Library of Congress Catalog Number 76-20170

· No source for this book in UK. Information on contents obtained from Susan Thomas at the Training Institute who kindly provided a photocopy.

POSSIBLY THE ONLY ARTICLES WORTH SUMMARISING IS THE ONE ON ENCOR AND THE ONE ON L’ARCHE

·

Table of Contents for Robert Kugel and Ann Shearer’s Changing Patterns in Residential Services for the Mentally Retarded

Introduction

Starting Points

Some Basic Changes in Residential Facilities Earl Butterfield

The Origin and Nature of Our Institutional Models Wolf Wolfensberger

A Perspective Ruby Luna

Instruments of Change

The Public Leopold Lippman

Public and Professionals G. Allan Roeher

The News Media Ann Shearer

The Government

The Legislature Gary Marbut

The Executive Burton Blatt

The Uses of Courts and of Lawyers Thomas Gilhool

The Universities James Clements

The Foundations

The Joseph P. Kennedy, Jr. Foundation Eunice Kennedy Shriver

Change by Persuasion-The Work of King Edward's

Hospital Fund for London James Elliott

Patterns Which Are Changing

The Philosophy

The Normalization Principle Bengt Nirje

National Patterns

Denmark N. E. Bank-Mikkelsen

Sweden Karl Grunewald

Provincial Patterns

Ontario Donald Zarfas

Local Patterns

ENCOR, Nebraska Brian Lensink

Wessex, England Albert Kushlick

A Planning Process

ComServ, Canada G. Allan Roeher

People, Places and Change

Architectural Implications H. David Sokoloff

The Caring Staff Ann Shearer

Parents and Professionals Robert Kugel

The Handicapped Person Ann Shearer

L’Arche Ann Shearer

Some Basic Changes in Residential Facilities Earl Butterfield

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Origin and Nature of Our Institutional Models Wolf Wolfensberger

· Not available in UK. Copy at the TI. Not yet read or reviewed.

A Perspective Ruby Luna

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Public Leopold Lippman

· Not available in UK. Copy at the TI. Not yet read or reviewed.

Public and Professionals G. Allan Roeher

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The News Media Ann Shearer

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Legislature Gary Marbut

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Executive Burton Blatt

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Uses of Courts and of Lawyers Thomas Gilhool

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Universities James Clements

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Joseph P. Kennedy, Jr. Foundation Eunice Kennedy Shriver

· Not available in UK. Copy at the TI. Not yet read or reviewed.

Change by Persuasion-The Work of King Edward's Hospital Fund for London James Elliott

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Normalization Principle Bengt Nirje

· Reprinted in Flynn and Nitsch and reviewed there.

Denmark N. E. Bank-Mikkelsen

· Reprinted in Flynn and Nitsch and reviewed there.

Sweden Karl Grunewald

· Not available in UK. Copy at the TI. Not yet read or reviewed.

·

ENCOR, Nebraska Brian Lensink

·

REVIEW

Wessex, England Albert Kushlick

· Not available in UK. Copy at the TI. Not yet read or reviewed.

ComServ, Canada G. Allan Roeher

· Not available in UK. Copy at the TI. Not yet read or reviewed.

Architectural Implications H. David Sokoloff

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Caring Staff Ann Shearer

· Not available in UK. Copy at the TI. Not yet read or reviewed.

Parents and Professionals Robert Kugel

· Not available in UK. Copy at the TI. Not yet read or reviewed.

The Handicapped Person Ann Shearer

· Not available in UK. Copy at the TI. Not yet read or reviewed.

L’Arche Ann Shearer

REVIEW

‘The Normalization Principle, and Some Major Implications to the Architectural-Environmental Design’ Wolfensberger 1977 ?

· Originally published in Bednar MJ, Barrier-Free Environments, Stroudsburg PA: Hutchinson and Ross 1977.

· Reviewed from Monograph published by Georgia Association for Retarded Ctizens 1978.

·

REVIEW IF I HAVE IT. THIS MAY BE THE ARTICLE THAT THE TI HAD RUN OUT OF- CHECK

‘The Prophetic Voice and Presence of Mentally Retarded People in the World Today’ Wolfensberger 1977 ?

REVIEW

‘An Attempt Toward a Theology of Social Integration of Devalued/Handicapped People’ Wolfensberger 1978 ?

REVIEW

·

‘The Normalization Principle’ Nirje 1976/1980

· Originally published in Changing Patterns in Residential Services for the Mentally Retarded (Kugel and Shearer 1976) and reprinted in Normalization, Social Integration and Community Services (Flynn and Nitsch 1980).

· Review taken from Flynn and Nitsch.

· Chapter sub-headings and summaries:

· Normalization principle

· What does normalization mean in practice?

· Profoundly Retarded and Some Severely Retarded People

· Some Severely and Moderately Retarded People

· Mildly Retarded People Who Have Left School

· Components of the normalization principle

· Normal Rhythm of the Day

‘It means getting out of bed, getting dressed, and being involved in meaningful activities, even if you are profoundly handicapped and physically disabled’

· Normal Rhythm of the Week

‘On the whole, people usually live in one place, work or attend school in another, and find ther leisure time activities in a variety of settings.’

· Normal Rhythm of the Year

· Normal Experiences of the Life Cycle

· Normal Respect

‘The normalization principle also means that normal respect and consideration should be given to the choices, wishes, and desires of retarded people and to their right to self-determination.’

· Living in a Heterosexual World

· Normal Economic Standards

· Normal Environmental Standards

· Integration and people with multiple handicaps

· Some implications of the normalization principle

· Appendix: on integration

· Physical Integration

· Functional Integration

· Social Integration

· Personal Integration

· Societal Integration

· Organizational Integration

‘Basis and Logic of the Normalization Principle’ Nirje 1985

· Originally presented to the Sixth International Conference of IASSMD, Toronto, 1982

· Published in 1985 in the Australia and New Zealand Journal of Developmental Disabilities

· He takes a Human Rights approach. He mentions the symposium of the International League of Societies for Persons with Mental Handicap in Stockholm in 1967 which considered the Legal Rights of the Mentally Handicapped.

· He traces the origin of the term ‘Normalization’ in the frequent usage of ‘normal’ as a description of the rights and expectations for people with impairment.

· He traces the concept of rhythms and experiences of life to Ruth Benedict’s paper Patterns of Culture.

· He quotes her:

‘No individual can arrive even at the threshold of his potentialities without a culture in which he participates.’

· He also summarises material from Benedict and from others including Margaret Mead:

‘…various cultures tried to put various persons seemingly outside the pale and palisades of society - into the forests, into the institutions, into the cities of alienation called Coventry or Ghettoburg or Gheel, in the Apartwoods. And Benedict noted:In Europe, in other centuries when children were occasionally found who had been abandoned and had maintained themselves in forests apart from human beings, they were all so much alike that Linnaeus classified them as distinct species, Homo Ferus, and supposed that they were a kind of gnome that man seldom ran across". Indeed, the renowned biologist from Uppsala had in his Systema Naturae, 1758, classified four types of Homo Sapiens and then, offering about ten European examples, added a different species, the fifth: Nomo Ferus- the.wild man or the wild child- thus giving the word to Itard. After describing their profoundly disturbed behaviours, Benedict concludes: "There is no doubt, of course, that they were children abandoned in infancy, and what they had all of them lacked was association with their kind, through which alone man's faculties are sharpened and given form" (p. 12-13).’

· Nirje then summarises the principle of Normalization.

· He then refers to a 1980 paper by Sven-Inge Windahl From Social Isolation to Meaningful Habilitation.

· He discusses Normalization as a Social Science Theory and refers to Gunnar Myrdal’s Objectivity in Social Research. He offers the following quote:

· ‘…Gunnar Myrdal, in his study "Objectivity in Social Research", points out that value premises in social science research are generally hidden, leading to biases. Therefore: "The only way in which we can strive for `objectivity' in theoretical analysis is to expose the valuations to full light, make them conscious; specific, and explicit, and permit them to determine the theoretical research". He lists a number of logical conditions for value premises, and among them, that they"must have realism, meaning they must be founded on peoples' actual valuations"; "be feasible, and should thus most often refer to a future situation" as well. One such realistic and supreme moral principle is the respect for human life, another is the egalitarian principle that all human beings have equal rights.’

1977

‘Behaviour Modification, Normalisation and Person-orientedness’ Briton 1977

1978

‘Normalisation: What of and What for?’ Briton 1978

‘Normalization: A New Look’ Beckman-Brindley and Tavormina 1978

‘Normalisation: Attention to a Conceptual Disaster Area’ Aanes and Haagenson 1978

1979

1980

‘Normalization, Social Integration and Community Services’ Flynn and Nitsch 1980

· Edited by Robert Flynn and Kathleen Nitsch and published in 1980.

· SUMMARIZE FROM PREFACE

·

TABLE OF CONTENTS OF FLYNN RJ, NITSCH KE

‘NORMALIZATION, SOCIAL INTEGRATION AND COMMUNITY SERVICES’

THE NORMALlZATION PRINCIPLE Systematic Statements and Clarifications

A BRIEF OVERVIEW OF THE PRINCIPLE OF NORMALIZATION

Wolf Wolfensberger

THE NORMALIZATION PRINCIPLE

Bengt Nirje

DENMARK

Neils E. Bank-Mikkelsen

THE DEFINITION OF NORMALIZATION Update, Problems, Disagreements, and Misunderstandings

Wolf Wolfensberger

RESEARCH, EMPIRICISM, AND THE

PRINCIPLE OF NORMALISATION

Wolf Wolfensberger

THE NORMALIZATION PRINCIPLE Implications for Legislating, lmplementing, and Evaluatlng Community Services

ANTI-INSTITUTIONALIZATION The Promise of the Pennhurst Case

David Ferleger and Penelope A. Boyd

RIGHT TO SERVICES IN THE COMMUNITY Implications of the Pennhurst Case

Frank Laski

TOWARD THE REALIZATION OF THE LEAST RESTRICTIVE EDCUCATIONAL ENVIRONMENTS FOR SEVERELY HANDICAPPED STUDENTS

Lou Brown, Barbara Wilcox, Edward Sontag, Betty Vincent, Nancy Dodd, and Lee Gruenewald

THE MARRIAGE OF SPECIAL AND GENERIC EARLY EDUCATION SERVICES

Charles Galloway and Phyllis Chandler

RESEARCH ON COMMUNITY RESIDENTIAL ALTERNATIVES FOR THE MENTALLY RETARDED

Laird W. Heal, Carol K. Sigelman, and Haruey N. Switzky

VOCATIONAL HABILITATION A Time for Change

Dauid J. Pomerantz and Dauid Marholin, II

COMPREHENSIVE VOCATIONAL SERVICES

John DuRand and Aldred H. Neufeldt

NORMALIZATION AND COMMUNITIZATION Implementation of a Regional, Community-Integrated Service System

Michael F. Hogan

SUPERMARKET OF SERVICES ALLOWS DEPENDENT ADULTS TO AVOID INSTITUTIONS

Martin Judge

NORMALIZATION, PASS, AND SERVICE QUIALITY ASSESSMENT How Normalizing Are Current Human Services?

Robert J. Flynn

CONCLUSION

NORMALIZATION Accomplishments to Date and Future Priorities

Robert J. Flynn and Kathleen E. Nitsch

APPENDIX

A NORMALIZATION BIBLIOGRAPHY

Kathleen E. Nitsch, Althea Armour and Robert J. Flynn

Chapter Summaries

· Below are given reviews of each chapter in the book. Some of these reviews are lengthy and others are merely a few words summarizing the important points or just describing the chapter.

Preface and Introduction

· Describes the structure of the book:

· Part 1- Describing the Principle

· Part 2- Implications for Services

· Part 3- Conclusion

· Flynn and Nitsch note :

‘Wolf Wolfensberger, Bengt Nirje, and Neils Bank-Mikkelson are the three "classical" definers of and writers on Normalization."

· Flynn and Nitsch note :

‘Nirje discusses normalization in a less universalistic fashion than … Wolfensberger… and concentrates on its implications for services to mentally retarded people rather than on its implications for services to deviant people tout court. Moreover, Nirje places primary, although not exclusive, emphasis on normalization as a means and process (i.e., on normalization of life conditions) rather than as an end and outcome.‘

· Flynn and Nitsch note :

‘Neils E. Bank-Mikkelsen … embeds a discussion of normalization and integration within the broader context of a historically-oriented discussion of mental retardation ser-vices in Denmark. Although he is the originator of the concept of nor-malization as currently understood, Bank-Mikkelsen seems never to have formulated a genuinely systematic statement of the principle, at least not one available in English. Perhaps this is not surprising, in light of his comment in this chapter that "in Denmark we have not theorized so much as in other countries about normalization." Nevertheless, Bank-Mikkelsen's discussion of normalization is important, and without knowledge of the thought of the person who first disseminated the con-cept, a full understanding of the evolution of the principle is simply impossible ….’

‘A Brief Overview Of The Principle Of Normalization’ Wolf Wolfensberger

· Originally given as a keynote address to a conference of rehabilitation educators in 1977 (from Introduction to Flynn and Nitsch.)

· Originally published in Grand SA, (Ed.), Severe disability and rehabilitation counselor training, Albany: State University of New York.

· Wolfensberger notes :

‘For all practical purposes, the concept of normalization owes its first promulgation to Bank-Mikkelsen, head of the Danish Mental Retar-dation Service, who phrased it in terms of his own field, as follows: "let-ting the mentally retarded obtain an existence as close to the normal as possible." He was instrumental in having this principle written into the 1959 Danish law governing services to the mentally retarded.’

· Wolfensberger notes :

‘Interest-ingly, the first systematic written statement of normalization occurred in the English literature, and was authored by the then executive director of the Swedish Association for Retarded Children (Nirje, 1969). In order to have a systematic statement in Danish and Swedish, it had to be retrans-lated back from English (Grunewald, 1971a, 1971b).’

· Wolfensberger notes :

‘In its North American form, the principle of normalization can be viewed as a meta-theory, or meta-system, in that it is a simple and parsi-monious statement, and yet it has many corollaries that affect not only the most clinical and direct services, but also the structural and systemic aspects of service systems. It is applicable to any type of human service work or profession, to any type of agency, and to any type of client, but it is most powerful when applied to services to societally devalued peo-ple. It subsumes a relatively large number of other human service sub-systems, sub-theories, practices and so on, and puts them into cohesion with each other; and it elevates to consciousness many kinds of practices (both good and bad) that service providers and others engage in. Indeed, one of its major benefits is in the area of consciousness-raising, and I will devote a good part of this presentation to how this may take place.’

· Wolfensberger notes that he uses three different definitions:

‘In my work, I use three definitions, all intended to say the same thing, but at different levels of "scientificness," depending on the audience:

1. The use of culturally valued means, in order to enable people to live culturally valued lives. 2. Use of culturally normative means to offer persons life conditions at least as good as that of average citizens, and to as much as possible enhance or support their behavior, appearances, experiences, status and reputation.

3. Utilization of means which are as culturally normative as possible, in order to establish, enable or support behaviors, appearances, experiences and interpretations which are as culturally normative as possible.’

· Wolfensberger notes on Role Circularity

‘The principle of normalization relies very heavily on a number of well-established concepts and theories. One of these is the concept of role circularity. Such circularity can be either positive or negative, depending on the initial expectation or perception that has been imposed on a person by the environment. If the role definition imposed on a person is a negative one, one can speak of that person being devalued, or "deviant," but I want to strongly emphasize that the definition of deviancy that I use is not necessarily that used by others, and different definitions have totally different implications.

‘In the definition I use, a person becomes deviant by a) being different from others, in b) one or more dimensions of identity, which c) are viewed as significant by others, and d) this differentness must be negatively valued. It is not differentness itself that makes for deviancy in this definition, but negatively valued differentness.’

· Wolfensberger note on Sources of a Person’s Deviancy and Stigmata :

‘If one looks at some of the dimensions that may be viewed as signifi-cant and negative by observers, one finds many familiar phenomena that can be arbitrarily classified in any number of ways…. The first such category is physical characteristicswhich may result in a person being devalued. Then there are various types of overt and covert behaviors. It is interesting that sometimes, a covert behavior such as a belief or idea does not define a person as devi-ant until the person opens their mouth and talks about it. Most interest-ing of all, to me at least, is the third category, namely, that the person can be placed in a deviant role merely by attribution. He/she may be and look and do like everybody else, but he/she "is one" because maybe their father "was one." A good example of this is the caste system in India. You can look like anyone else, do what anyone else does, believe what anyone else believes, and so on, but still be devalued because your father, your mother, or your lineage in general was untouchable.’

Sources of a person's deviancy and stigmata

·

Sources Examples

1. Physical characteristics, viewed mostly as non-responsibleA. Primarily inherent: Physical features Congenital handicaps AgeB. Primarily acquired: Physical features Secondary handicaps Height Albinism Old ageInstitutional shuffle Amputation

2. Behavior, viewed mostly as responsibleA. Overt: Acts Attire Social associations Physical associations B. Covert:Beliefs Ideas Crime, addictions Out-dated fashions Counter-culture membership Residence, possessions Delusions Atheism

3. Descent, nationality, attribution, viewed as non-responsible Caste

· Wolfensberger notes on historically devalued roles :

‘In most societies, and across the span of history, devalued people tend to be thrown into a relatively small number of relatively cohesive role images. These role images are those of the subhuman individual, the object of dread or menace, the object of ridicule or pity, the holy inno-cent, the burden of charity, the eternal child, or the sick person. These role perceptions tend to be highly correlated with various systematic human service approaches.’

Socio-historical deviancy role perceptions and resultant service and staffing models :

Role Perception Service Model Staff Model

Subhuman:AnimalVegetableInsensate Object Neglect, custody, destruction Catcher, attendant, caretaker, keeper, gardener, exterminator

Menace or Object of Dread Punitive or detentive segregation, or destruction Guard, attendant, exterminator

Object of ridicule Exhibition Entertainer

Object of Pity Protection from demands Member of religious bodies, charitable individual

Burden of Charity Industrial habilitation Trainer, disciplinarian, work-master

Holy Innocent Protection from evil Members of religious bodies, charitable individual

Eternal Child Nurturant shelter Parent

Sick person Medical Physician, nurse, therapist

· Wolfensberger notes :

‘Now if we go a bit into the history of societal reaction to devalued people, we can probably categorize all societal responses into four cate-gories (Table 3). Societies, or individual people, have always wanted to destroy deviant individuals, be it by capital punishment, euthanasia, abortion, genocide, and slaughter. The second broad category is to pro-tect non-deviant people from deviant people. That is what society, and we as service providers, do much of the time. The third category is a reversal of the second in that the society, or majority culture, is seen as evil, and a particular group of people is seen as needing protection from the evilness of its major culture. For instance, some people have labeled retarded people as holy innocents who must be taken out of the evil culture and put into sheltered havens. So we may see services of this nature where the innocent, the harmless, the defenseless can be protected’

Four characteristic historical categories of societal response to people judged deviant

Categories Examples

Destroy Deviancy Capital punishment, abortion, euthanasia, genocide

Protect non-deviant people from deviant people:RejectionRepressionRestrictionSegregationConfinementPunishmentEjection Architectural barriers De-individualizationDriver’s LicenseInstitutions"Intermediate Care"Revenge, brutalizationShip of Fools

Protect deviant people from non-deviant peopleSegregation Havens

Reverse deviancyRestorationRehabilitationReintegration Prosthetic supportsEducationAdaptive dispersal

· Wolfensberger on deviancy :

‘Since deviancy is socially, subjectively, and variably defined, and varies from culture to culture and time to time, it is relative. It is not within the person; it is within the imposed social roles, the values, and the perceiver's interpretation. Therefore, deviancy can be reduced or eliminated either by a) changing the perceptions or values of the per-ceiver, or b) minimizing the differentness or stigma of deviancy that acti-vates the perceiver's devaluation. These are two equally valid and impor-tant approaches. Sometimes, people tend to emphasize one over the other, and much of our clinical work or training focuses on parts of the second aspect, while the work of changing societal perceptions and values which actually perpetuate the need for the direct clinical services is neglected. Many of the problems of handicapped and elderly people are really not primarily and initially personal, clinical shortcomings; they often become that only as a result of rejection, isolation, separation, congregation, destructive role expectancy, and so on. Then, indeed, elderly people do become senile, disoriented, and so on, even though these characteristics need not invariably be intrinsic signs of aging as our culture and the bulk of the professionals make them out to be.’

· Wolfensberger on the Conservatism Corollary :

‘the means are to be used in order to enable a person to enjoy life conditions (such as housing, clothing, education, health, and so on) that are at least as good as the average citizen's. The question is why at least as good. This implication derives from the "conservatism corollary" of the normalization principle, which says first of all that many or most people are deviant in some way, but usually in few or minor ways so that they are not placed into deviant roles and are not really hindered in their functioning.’

· Wolfensberger on multiplication of deviancies :

‘But as deviancies and stigmata increase in number, severity, or variety, they tend to have a multiplicative rather than additive image impact upon observers. To borrow from the mathematical expression of the factorial, if there is one stigma or one deviancy, this might be expressed as 1 !, or 1 x l. Now suppose there are two stigmata or deviancies, then the expression might approximate something like 2!, or 2 x 1 = 2, which is a 100% increase in the deviancy impact. But if the number of deviancies or stigmata goes to three, it becomes 3!, or 3 x 2 x 1 = 6, so the impact jumps from two to six, or 300%. Of course, that dynamic is not mathematically exact, but something like this seems to happen.’

· Wolfensberger further notes :

‘This whole process is true not only for the number of stigmata within a person, but also for the number of stigmatized persons within a group. If six individuals were walking downtown alone, it would not make any difference if one of those persons limped, one had an odd hairdo, another had odd clothing, etc. People with one or another of these oddities are seen on the street all the time. But when there are three, four, or more oddities in a group of five, six, or ten people, the whole group becomes stereotyped.’

· Wolfensberger on activities for the devalued :

‘For any number of handicapped people, it can be very dangerous to engage in activities historically associated with particular handicaps, or with sheltered workshops, or with institutions. For example, it is a devastating perpetuation of a stereotype when blind people work on caning chairs and making brooms. … Many types of woodwork have historic images of sheltered workshops and institutions; so does salvage work, of course. Then there is upholstery, shoe and mattress repair-the classics of institutional work. Finally, of course, fake work may be all right for competent railroad workers and printers; it is not all right for the image of people already devalued for their supposed incompetence.’

· Wolfensberger on how Normalization interacts with common morality :

‘For example, normalization does not necessarily mean doing what every one else does. It may not necessarily mean that a normalization implication is moral or immoral. There may be some things that may be culturally normative and valued that may not be considered moral by a lot of people. Normalization does not mean being like everybody else, because you can be or do something which, even though it is not viewed by everyone as common, may still be viewed by most people as culturally acceptable. Even such things as the old-fashioned virtues may not be widely practiced any longer but, if you found them practiced, no one would find them bizarre or even offensive. They would be somewhat still within the range of what our culture would expect or value.’

· Wolfensberger on actions at different levels and the dimensions of Interaction and Interpretation :

‘An important aspect of the normalization principle is the distinction between implications in the realm of interactions with people (what people do to, with, and for others in direct service involvement, teaching, counseling, healing, personal social contact, life sharing, living with and so on), vs. the interpretations of people or groups (what people think and feel, tones of address, tones of voice, images, meaning, expectancies and attitudes). I submit to you that the structure of societal services, including its clinical interactions, will be derived from the images society has of the people served…. The normalization principle must also be looked at in terms of its implications at three levels of social organization. At the level of the person, the clinical direct one-to-one level, we do, among others, what I just listed: teaching, healing, loving, etc: We must also work via and on the primary and intermediate social systems: the structure of a sheltered workshop, its hours, its manpower model and so on. These are all either of an interactive or of an interpretive nature. The third level is the societal level: normalizing societal structures and positive cultural attitudes and values. And so we have six boxes in the table, and sometimes when we have more time, we spend as much as a day reviewing the implications of just one box. Most of the current clinical services are in the realm of skills and habits of individuals (the first box).’

· Wolfensberger summarizes the above in table format:

A schema of the expression of the normalization principle on three levels of two dimensions of action

Dimensions of Actions:

Levels of Action Interaction Interpretation

Person Eliciting, shaping, and maintaining socially valued skills and habits in persons by means of direct physical and social interaction with them Presenting, managing, addressing, labeling, and interpreting individual persons in a manner emphasizing their similarities to rather than differences from others

Primary and intermediate social systems Eliciting, shaping, and maintaining socially valued skills and habits in persons by working indirectly through their primary and intermediate social sys tems, such as family, class room, school, work setting, service agency and neighborhood Shaping, presenting, and interpreting intermediate social systems surrounding a person or consisting of target persons so that these systems as well as the persons in them are perceived in a valued fashion

Societal systems Eliciting, shaping, and maintaining socially valued behavior in persons by appropriate shaping of large societal social systems, and structures such as entire school systems, laws, and government Shaping cultural values, attitudes, and stereotypes so as to elicit maximal feasible acceptance of cultural differences

· Wolfensberger on Physical and Social Integration :

‘One of the major implications particularly in the interpretation dimension on the systemic level is the whole issue of societal integration of devalued people. Integration has at least 14 components, as shown in [below]. It thus is not as simple as some people assume. A lot of people over-simplify when they equate mainstreaming with integration. For one, we strongly differentiate between physical and social integration. Physical integration consists of at least four major sub-dimensions, which subdivide in turn, and which are physical facilitators (favorable preconditions) to social integration. We can have social integration even though some of these are lacking, but when you think that thousands of services over scores of years have not had and do not have many of these preconditions, you can see where the likelihood of social integration actually taking place is greatly reduced. You can see where the proximity of

a service for devalued people to the general population of the service area can be important, as can proximity and access to potentially socially integrative resources such as stores, schools, recreational facilities, and so on. Then there is the size of the client groups: when you have 14,000 people congregated in one spot (remember Milledgeville, Ga.), it is almost impossible to socially integrate. It may happen that you have 200 devalued people in one city block in New York City, and no one thinks anything of it. In a typical family residential neighborhood, once you have a house with eight devalued people in it, you had better go six blocks away before you set up the second group home. We have slides of services on streets where almost every single house is a group home of a different agency (each for devalued people), and almost all remaining houses are cat houses or funeral parlors.’

·

The two integrations and their sub-components :

Physical Integration

Proximity of service to population

Local proximity

Regional proximity

Access of service to clients, workers, public

Physical context of site

Physical resources accessible for potential integration

Program-neighborhood harmony

Congregation, and assimilation potential

Social Integration

Socially integrative interpretations

Program and facility labels

Building perception

Function congruity image

Building-neighborhood harmony

Deviancy image juxtaposition

Deviancy program juxtaposition

Socially integrative program structures

Deviant persons juxtaposition

Staff deviancy juxtaposition

Client and other deviancy juxtaposition

Socially integrative social activities

· Wolfensberger on the importance of less obvious interventions :

·

Some of the less obvious implications of the normalization principle

1. Enhancing the cultural stereotype of a deviant group is often more important than even sizable short-term or local clinical benefits.

2. Elimination of negative deviancy image juxtaposition, and enhancing the "representation" of persons is often as important as normalizing their behavior; e.g., choosing workshop task on basis of image rather than income.

3. Use of "conservative" (more valued) alternatives from a range of normative options.

4. Avoidance of deviant person juxtapositions: staff-client, client-client, client-public.

5. Age separation, and age-appropriate structures.

6. Dispersal instead of congregation of deviant persons.

7. Physical placement of services into culture-typical contexts. 8. Dignity of risk.

9. De-emphasis of staff-client distinctions.

10. Separation of the domiciliary function.

· Wolfensberger on Imagery generally :

‘negative imagery (see left column of Table 7) is infinitely more likely to be attached and projected upon devalued people than positive imagery (right column).’

Deviancy image juxtaposition: culturally prevalent images and their polarities

(-) (+)

Virtue Sin/diabolicness/evil Virtue/angelicness/divinity

Irresponsibility Responsibility

Criminality/corruption Lawfulness /morality

Pity/charity Respect/entitlement

Beauty Ugliness/disorder Beauty/order

Darkness/blackness Light white

Life Illness/death Health/vitality

Incapacity/impairment/weakness Strength/power

Oldness Youth

Decay Growth

Subhumanity Humanity

Quality Bottom/down Top/up

Left Right

Worthlessness/discard Value

· Wolfensberger on Imagery and the elderly :

‘…elderly people in our society are relentlessly imaged as being ill, dying, incapable, impaired, weak, even evil, etc., because in our society, we value health and vitality. We have very few positive images of elderly people. The other day, for the first time ever, I saw an advertisement in a department store which showed a dignified old man. Up until that time I never consciously realized that in most advertising, the models used are either children or young adults. One practically never sees the image of an elderly person, thus the unconscious message is that being old does not sell anything.’

· Wolfensberger on negative image juxtaposition :

·

Objects and activities which often constitute negative image juxtapositions

1. Vice: bawdy house, burlesque show, massage parlor, adult movie house, drive-in, bar,

casino, race track.

2. Menace: jail, shackles, restrictive windows, fence, caution sign, keys on belts.

3. Decay: filth, dirt, disorder, discards, garbage, collection box, dilapidated house.

4. Disease: prosthetics, handicap, clinic, hospital, nursing home, rest home. 5. Death: cemetery, mortuary, morgue, casket factory, "dead-end," "oneway," and "no exit" signs, exterminator.

6. Animality: most animals, zoos, animal names, cages.

7. Triviality: silliness, frivolity, toys, recreation facilities.

8. Grotesqueness: gargoyles, clowns, circus, carnival, mardi gras.

9. Want: poverty area, ghetto, slum, public housing.

10. Separateness, rejection: "do not enter" sign, railroad tracks, warehouse.

11. Hopelessness: calling a children's hospital after St. Jude; calling a handicapped child "Jude."

· Wolfensberger on deviancy image juxtaposition :

·

Sources of deviancy image juxtaposition

A. Deviancy-imaged program funds or funder

1. Funds: liquor and tobacco tax

2. 2. Funder: law enforcement agency

3. Fund label: rehabilitation for disabled

B. Deviancy-associated administration, coordination, regulation: MH, MR, drug and alcoholism board

C. Deviancy-associated service setting

1. History: ex-prison

2. Proximity: red-light district

3. Association: kindergarten in a university special education building

4. Facility features: barred windows

D. Deviancy symbol association with, or among

1. Programs: handicapped logo on door

2. Symbols: facility sign next to dead-end sign

3. Persons: MR and aged

4. Animals: MR and zoo

5. Names and labels: Sunset Lodge

6. Activities: OT weaving

7. Objects: garbage

8. Products: brooms, made by blind

9. Processes, rules, regulations: prohibition of matches

· Wolfensberger on naming of programs

‘Another major area of deviancy image juxtaposition is the names of service facilities, such as calling a regional mental health center the Madden Zone Center, or an institution for the disordered mentally retarded the Batty State Hospital (there are two such in the United States), a highrise for the elderly Toomey Abbot Towers (on top of a cemetery and next door to a cemetery), a nursing home for the aged called Freezers, a hospital for handicapped children called St. Jude's Hospital (St. Jude being the patron saint of hopeless causes), an alcoholism clinic called Bahr Treatment Center, and so on. I have thousands of such image-endangering service names in my collection, some gross, some subtle. Many of them are literally unbelievable. For instance, when you see what is being said about elderly people by the endless number of crazy, brutal, mocking, devaluing-and yet largely unconscious-facility names, it is unbelievable. Very rarely do we see the opposite of that, which the normalization principle would suggest, such as patriotic or vitalistic images; rarely does one see positive images conveyed through the use of facility names that carry status. In these, as in so many ways, we are selling out the valuation of handicapped people for a mess of pottage by reinforcing the imagery of dependency, menace, handicap, and ridicule.

‘For example, the names of a number of tests that are often administered to poor inner-city children are the WRIFT, WRIOT, WREST and WRAT. Another example is a fund-raising drive at Syracuse University for muscular dystrophy. Our students succeeded in raising $100,000-a national record-but this money was raised through the most bizarre things you have ever heard of: raffling off a naked Lady Godiva; raffling off an evening with a porno queen; raffling off an ounce of marijuana. I have compiled the death imagery juxtapositions of services for the el-derly just in Syracuse alone (Table 10). At least three facilities are located on dead end streets; one is on two dead-ends, and no matter which way you go to visit your old mother or grandmother, it says "dead end" every time. The message transmitted about elderly people in Syracuse is extremely powerful, yet all the gerontology professionals and professors we have talked to have denied that this is so, or ridiculed it and us, and said that these things are "just a coincidence." When do coincidences be-come systematic?’

Death image juxtapositions involving services for the elderly in the Greater Svracuse area

Facilities built in/on cemeteries:

Toomey Abbot Towers; Vinett Towers; Syracuse University Gerontology Center

Services located adjacent or very close to cemeteries:

Jewish Home of Central NY; Hill Haven NH (Nursing Home); Westvale NH; Toomey

Abbot Towers; Van Duyn (County Home); Melrae NH; Baldwinsville Sanitarium; Ross

Towers; James Square; Wagon Wheel Senior Citizens Pro-gram

Services located in former funeral homes:

Hutchings Geriatric Day Care Center; Twin Elms NH

Services located adjacent to or very close to funeral homes:

Westvale NH; Stafford Manor; Twin Elms Hospital; Minoa NH; Phillips NH (defunct);

Legal Services for Elderly (defunct); Metropolitan Commission on Aging

Services located close to county coroner: Twin Elms

Services in former hospitals: Castle Rest

Nursing home administrators who are embalmers: Stonehedge NH;

Mortuary science students employed as orderlies in various nursing homes

Facilities located on "dead end" streets:

York State Manor; Loretto Geriatric Center Facilities located on 2 "dead end" streets:

Bernadine Apts.

Facilities located adjacent (or nearly so) to garbage dumps:

Brighton Towers; Loretto Geriatric Center; Bernadine Apts.

TRANSFER CONTENT OF THIS TO LATER SECTION ON NAMES TO GIVE REFERENCES.

· The remainder of the article is a summary of PASS and FUNDET which may need to be summarised later.

‘The Normalization Principle’ Nirje

· Previously summarised above.

‘Denmark’ Bank-Mikkelsen

· From Introduction to Flynn and Nitsch- first published 1976.

‘The Definition Of Normalization: Update, Problems, Disagreements, and Misunderstandings’ Wolfensberger

· Wolfensberger gives a history of the use of the term Normalization in Human Service Literature :

· Maria Montessori used it in The Secret of Childhood published in 1950, but only once and only meaning returning or converting a child to ‘normal’

· Shakow used the term in 1958 in a paper in German on Schizophrenia.

· Mack Beck used the term in 1964: ‘normalization of social experience for the retarded child…’

· Olshansky used the term in his paper Passing: the Road to Normalization for Ex-Mental patients

· None of these uses were connected to what eventually became Normalization as it is now known.

· Wolfensberger summarises his view of the Danish formulation. He refers to Bank-Mikkelson’s 1969 paper in Kugel and Wolfensberger and notes that he was instrumental in having the principle, although not the term Normalization, written into Danish law in 1959. He further notes that this formulation is specific to people with mental retardation and is primarily concerned with outcome.

· Wolfensberger summarises his view of the Swedish formulation by Nirje described previously. He notes that this formulation is also limited to people with mental retardation, but is more concerned with methods than with outcomes.

· Wolfensberger notes that Bank-Mikkelson’s formulation has been interpreted as being consistent with segregation.

· Wolfensberger notes on his eformulation of Normalization :

‘Deeply influenced by Bank-Mikkelsen and Nirje, and the work in Denmark and Sweden, I attempted from about 1969 onward to define normalization in such a way as to meet the classical criteria of an elegant theory; namely, a parsimony in formulation coupled with the maximum amount of explanatory and predictive power. After some initial fixation on mental retardation, I perceived 1) that the principle could easily be generalized to all devalued persons, 2) that it could cohesively concern itself with both means and outcomes, and 3) that it would be able to subsume many concepts and theories that previously had existed disjointedly and in smaller scope. It soon became apparent that, aside from clinical means and clinical outcomes, the issue of systemic means and systemic outcomes could easily be accommodated and, indeed, should be subsumed in a new formulation so as to approximate further the desiderata of parsimony and generalizability.’

· Wolfensberger notes the initial difficulty of having his work published :

‘I began to write on the topic as soon as I returned from a trip to Denmark and Sweden in the spring of 1969, where I was most cordially hosted and tutored. However, I had great difficulty in getting my papers accepted in American journals. As a result, I concluded that in order to achieve publication of what I considered to be a fundamentally important body of material, I had to bypass the dominant journal editors and write a book, which, after being rejected by innumerable publishers, eventually was accepted for publication by the Canadian National Institute on Mental Retardation. Before its publication in 1972, one of the papers that I had long and unsuccessfully tried to have published was finally accepted in very altered form (Wolfensberger, 1970) in the American Journal of Psychiatry. It focused primarily on the implication of the normalization principle to mental health services.’

· Wolfensberger notes the development of the PASS tool, and mentions that few people who have criticised Normalization have referred to this as a source.

‘In order to further specify normalization applications to human services and to be able to quantitatively evaluate the extent of such applications, Linda Glenn and I developed a two-volume tool called Program Analysis of Service Systems (PASS). It was used in Nebraska for some years, revised, published (Wolfensberger & Glenn, 1973a, 1973b), used more generally, and revised again (Wolfensberger & Glenn, 1975a, 1975b). It has proven indispensable in illustrating the meaning of normalization, and even though many thousands of copies have been sold, most people who have critiqued normalization theory have failed to refer to this tool.’

· Wolfensberger gives a series of definitions of the North American formulation of Normalization :

‘"Utilization of means which are as culturally normative as possible, in order to establish, enable, or support behaviors, appearances and interpretations which are as culturally normative as possible." For less formal teaching purposes, I also often use a less awkward phrasing: "Use of culturally normative means (familiar, valued techniques, tools, methods), in order to enable persons life conditions (income, housing, health services, etc.) which are at least as good as that of average citizens, and to as much as possible enhance or support their behavior (skills, competencies, etc.), appearances (clothes, grooming, etc.), experiences (adjustment, feelings, etc.), and status and reputation (labels, attitudes of others, etc.)." When I am asked to explain normalization to a lay audience in a few seconds, I sometimes refer to "the use of culturally valued means in order to enable people to live culturally valued lives."

A brief, updated, general overview of normalization is contained in Wolfensberger (1977a [chapter l, this volume]), and an updated, but less brief, overview that emphasizes environmental and architectural implications is found in Wolfensberger (1977b).’

· (The latter reference is to Wolfensberger’s paper that appeared in Bednar.)

· Wolfensberger notes on the process of attitude formation as a background to normalization :

·

· A Clarification of Some of the Determinants of Normalization

Cultural Values (Via a process of socialization leads to) Cultural Norms which (Via a process of Internalization lead to) Statistical-behavioral norms

Constitute a society’s idealized standards of the desirableHighly generalDerived from broad human experience and specific historical developmentInvested with a ‘sacred’ characterRarely attained by any one person More specific rules based on valuesInfused with a moral imperative or ‘oughtness’Prescribe generally expected behaviors, traits, or appearances for specific situations.Sanctions are either positive (honor) or negative (opprobrium)Include folkways, mores, laws Empirically-observed regular patterns of behavior, traits and appearancesProduced because most people believe in, approve of, r conform to most cultural norms of the time

·

· Wolfensberger then describes various controversies about normalization. This is briefly summarised below by headings and notes.

I WILL NEED TO RETURN TO THIS LATER WHEN CONSIDERING CRITIQUES AND REBUTTALS.

· ‘Failure to relate to any of the major definitions of normalization’

· ‘Confusion among competing definitions’

· ‘Alliance with one major definition and rejection of others’

· ‘Failure to understand one of the major normalization formulations’

· ‘Adherence to theoretical systems that clash with normalization or some of its implications’

· ‘Miscellaneous misinterpretations, misconceptions, or critiques regarding normalization’

· ‘Normalization as Humanization’

· ‘Normalization as Cure’

· ‘Normalization as Mainstreaming’

· ‘Normalization as a Single-path and Monolithic’

· ‘Normalization as only applicable to the Mildly Impaired’

· ‘Normalization as Demanding "Normalize or Perish"’

· ‘Normalization as Unrealistic’

· ‘Normalization lacks Evidence’

· ‘Miscellaneous or Mixed Issues’

· ‘Outright perversions of normalization’

· ‘Some Clarifications’

· ‘Differentiating Process and Outcome’

· ‘Differentiating Degrees of Normalization’

· ‘Differentiating Physical from Social Intergration’

· Recognizing that Normalization corollaries my clash with each other’

· Wolfensberger on the principle of least restriction :

‘A series of considerations and choices are presented below that should be reviewed by the person who is confronted by the dilemma of a client pursuing a denormalizing option. Underlying this sequence are three related principles: first, one pursues the line of persuasion, pedagogy, modeling, and other forms of culturally normative social influence to steer a person toward a course of action one desires. Second, one imposes coercion only where one would do so legally in the larger societal context, i.e., where one would do so with other (valued) citizens of the same age. Third, one chooses the least restrictive alternative if one does coerce. Thus, one proceeds as follows:

As a precondition to almost any course of action, it is often necessary (especially with adults) to determine whether a person understands the problem that is at stake, the specific aspect of his/her own functioning and identity, the likely (or even quasi-certain) consequences of his/her own behavior, and the nature of a proposed measure.

2. In order to raise a person's level of understanding, or to move him/ her toward a desired course of action, the utilization of culturally normative informal avenues or social influence should be explored and applied to the point of grossly diminished returns. Many people who choose nonnormalizing options have had little or no relevant education or training, perhaps have never had the opportunity to interact in a positive fashion with a valued and adaptive age peer, and/or have never had the nature and consequences of their choices interpreted to them. Thus, numerous options are typically available for noncoercive change, including systematic and long-term reinforcement for emitting the desired responses. Except in emergency situations, coercion should not even be considered until social influence options have been exhausted-and only too often these have never even been tried in a valid fashion.

3. Particularly where adults of legal age are involved, it is often essential to ascertain a erson's level of competency for making important decisions.

4. In instances in which a person does not appear to be competent, it must be determined who is formally responsible for the person under law and/or informally in fact and practice. Here, one must not merely be oriented to the formalities of the law, but also to the realities of special social relationships, and an individual who has carried de facto responsibilities for the person in question should be accorded extensive respect and participation in the decision-making process.

5. If a person is a minor without a competent guardian or an adult who is significantly impaired in competence, a guardian should be appointed. This guardian should be a minimal guardian, i.e., the guardianship role should be specified by the court to be no more extensive than the person's impairment warrants.

6. In instances in which shortcomings in competency to understand or act do exist, it then becomes important to determine what has been and can be done to increase competency; whether the measures that have been employed have been adequate; and if they have not been adequate, whether there is a reasonable likelihood that additional measures may increase the person's potential for comprehension and competency.

7. In the case of children, coercive methods applied normatively to valued children (exacting obedience, being under the physical and largely also the social control of parents or parent surrogates, etc.) may be applied, although social influence methods should generally be given priority over coercive ones.

8. Before applying coercion to an adult, it should be determined whether the issue at stake is so important as to warrant the coercion. The issue should be carefully examined not only in its own right, but also in relation to other issues that involve the person, and that may very well have a higher urgency. An issue that may be important, if it is the only one at stake, may recede into insignificance when it coexists with half a dozen other and even more important ones.

9. It is important that, to the highest degree possible, the person understand not merely the demands made upon him/her by an interventive measure, but also the likely benefits if the measure is successful, or the potentially unpleasant consequences if it should fail.

10. The people in power who are involved should develop a clear picture in their minds just what is at stake in the proposed intervention, what infringement of the person's rights might be entailed, and what the upper and lower limits of the likely outcomes are apt to be.

11. If proper legal and moral means are used to override a client's wishes and rights, the duration of this state of affairs is to be considered. Other things being equal, short-term structures are more defensible than long-term ones.

12. Legalities, lack of resources, the person's condition, etc., may be such as to render effective intervention an impossibility, at least in terms of making a significant difference in a person's life. In some cases, all one can do is to share suffering and walk with a suffering person without effecting more than a moral victory.’

‘Research, Empiricism, And The Principle Of Normalisation’ Wolfensberger

· This article has two main arguments.

· The first is that Normalization is based on well researched scientific foundations. Wolfensberger takes one issue of a Mental Retardation Journal and shows how, ‘coincidentally’ almost every article has something to say about the validity of Normalization.

· The second argument that he offers is that further empirical evidence is not needed to show certain ‘obvious’ outcomes- for instance, research that shows that people with mental retardation act similarly to other humans.

· This article is somewhat defensive.

· There ar features of interest for the planned critique of criticisms of Normalization/SRV.

I WILL NEED TO RETURN TO THIS LATER WHEN CONSIDERING CRITIQUES AND REBUTTALS.

‘Anti-Institutionalization The Promise of the Pennhurst Case’ Ferleger and Boyd

· A summary of the case that resulted in the declaration that a mental retardation institution made normalization and minimally adequate habilitation simply impossible. The history of the Pennhurst case is reviewed and they consider the doctrine of anti-institutionalization.

FULL SUMMARY TO BE WRITTEN LATER

‘Right To Services In The Community: Implications of the Pennhurst Case’ Laski

· Considers the implications of the Pennhurst case and promotes small scale community service systems.

FULL SUMMARY TO BE WRITTEN LATER

‘Toward The Realization Of The Least Restrictive Educational Environments For Severely Handicapped Students’ Brown et al

· A promotion of normalized educational settings for severely handicapped students.

FULL SUMMARY TO BE WRITTEN LATER

‘Special And Generic Early Education Services’ Galloway and Chandler

· Guidelines for normalizing early educational services to handicapped children. Based on ENCOR. Notes on reducing stigma and enhancing competence.

FULL SUMMARY TO BE WRITTEN LATER

‘Research On Community Residential Alternatives For The Mentally Retarded’ Heal, Sielman and Switzky

· ‘the most comprehensive discussion available in the literature of research on community-based residences for retarded persons.’

· They find that:

‘1/ Normative personal appearance (neatness, cleanliness, style of dress), vocational skills, and social skills appear to be positively related to successful community adjustment.

2/ Severely impaired persons can succeed in the community when provided adequate support services.

3/ Intensity of programming and training in independent living skills are positively associated with community adjustment among former institutional residents.

4/ The degree of behavioral deviancy is negatively related to community adjustment.

5/ Initial community opposition to residential facilities appears to soften and may even turn into acceptance once neighbors become accustomed to and exposed to positive experiences with community residences.

6/ Apartments and smaller group homes appear to be more normalized than larger community residences.

7/ Smaller group home size is positively associated with resident autonomy and exercise of responsibility within the residence.

8/ The courts have produced favorable rulings on zoning disputes in those instances where community residences have blended with normative neighborhood and life-style patterns.

9/ Th